Operating Director
Kathy Heptinstall
The MDS Foundation
PO Box 353
36 Front Street
Crosswicks, NJ 08515
Tel: +1 800-MDS-0839 within the US
Outside the US only +1 609-298-6746
Fax: +1 609-298-0590
E-mail: kheptinstall@mds-foundation.org
The Myelodysplastic Syndromes Foundation was established by an international group of physicians and researchers to provide an ongoing exchange of information relating to MDS.
Until the Foundation was set up, no formal working group had been devoted to MDS. During the past decade we have conducted seven international symposia in Austria, England, the United States, Spain, Czech Republic, and Sweden. The Seventh International Symposium will be held May 15-18, 2003 in Paris, France.
One major role of the Foundation is our international information network. This network provides patients with referrals to Centers of Excellence, contact names for available programs, sharing of new research and treatment options, and extension of educational support to both physicians and patients. Ultimately, we hope to provide funding and oversight for international studies in MDS.
In response to the needs expressed by patients, families, and physicians, we have established patient advocacy groups.
The MDS Foundation is a publicly supported organization, exempt from federal income tax under section 501(C)(3) of the IRS code.
